JILL AND EDDIE VEDDER COME TOGETHER WITH CELEBRITY FRIENDS FOR VENTURE INTO CURES, A VIRTUAL EVENT SUPPORTING EB RESEARCH PARTNERSHIP’S MISSION TO FIND A CURE FOR EPIDERMOLYSIS BULLOSA
AIRING NOVEMBER 18, THE DIGITAL EVENT FEATURES INSPIRING STORIES OF EPIDERMOLYSIS BULLOSA (EB) FAMILIES, SURPRISE CELEBRITY MOMENTS AND TWO NEW SONGS BY EDDIE VEDDER, INSPIRED BY EB
10 NOVEMBER 2020 (TORONTO, ON) -- EB Research Partnership (EBRP) announces Venture Into Cures, an inspiring virtual event led by Co-Founders Jill and Eddie Vedder airing November 18, 2020 at 8 p.m. ET. The show will feature uplifting stories about individuals and families living with Epidermolysis Bullosa (EB) alongside appearances and performances from celebrity friends to educate viewers about EB and raise critical funds for research toward a cure for EB and other rare diseases. Venture Into Cures will include memorable and moving moments, including the premiere of new songs by Eddie Vedder, inspired by EB families: the debut of “Matter of Time” and a new version of “Say Hi”. Venture Into Cures, will stream globally for free at www.ventureintocures.org and others. A full list of streaming sites can be found further below.
The one hour show, produced by Door Knocker Media and Seed Entertainment, includes special appearances by Judd Apatow, Bradley Cooper, Laura Dern, Billie Eilish, Chris Hemsworth, Jimmy Kimmel, David Letterman, Gaten Matarazzo, Luis “King Kong” Ortiz, Adam Sandler, Jill Vedder, and Renée Zellweger, and inspiring musical performances by Jon Batiste, Alessia Cara, Andra Day, Glen Hansard, Adam Levine, Keb’ Mo’, Lukas, Micah and Willie Nelson, and Eddie Vedder.
“Ed and I are incredibly grateful to everyone joining us for Venture Into Cures. Every day kids with EB and their families face astonishing challenges -- this event will give people a glimpse into their world. EBRP’s mission is to find a cure for EB, and this event will help bring us one step closer to making that mission a reality by adding momentum to the work being done.” says Jill Vedder, EBRP Co-Founder.
EB is a life-threatening genetic disorder that affects approximately 500,000 people worldwide. Called “Butterfly Children” because their skin is as fragile as the wings of a butterfly, children with EB face severe pain, open external and internal wounds, and a grueling daily bandaging process. There is currently no treatment or cure for EB, however EBRP’s innovative Venture Philanthropy model is helping to fast-track not only a cure for EB, but therapies that could affect thousands of other rare diseases.
As the largest global organization supporting EB research, EBRP has funded 80 projects through their innovative model, directly impacting the clinical landscape. Through EBRP’s work, clinical trials for EB have increased by 15 times, including four Phase III clinical trials, the final phase before the FDA considers approval for a new therapy.
“Our team is dedicated to accelerating life-saving treatments for patients and families battling EB, and Venture Into Cures offers us the opportunity to involve more people in our mission than ever before. Together, we will heal EB, and in the process, pioneer an innovative model for all rare diseases.” says Michael Hund, CEO of EBRP.
Learn more about the Venture Into Cures live show at www.ventureintocures.org.
Learn more about the life-changing work of EBRP at www.ebresearch.org
Venture Into Cures live streaming channels include:
- Websites: www.ventureintocures.org and www.pearljam.com
- Facebook: Pearl Jam, Eddie Vedder, EB Research Partnership, and Nugs.net
- YouTube: Pearl Jam, Eddie Vedder, EB Research Partnership, Nugs.net, and The Ohana Fest
About EB Research Partnership
Founded in 2010 by a dedicated group of parents and Jill and Ed Vedder (Pearl Jam), EB Research Partnership (EBRP) is the largest global nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth.
Working around the clock with offices in the US and Australia, EBRP utilizes an innovative venture philanthropy business model. When making a grant to a research project, they retain the added upside of generating a recurring revenue stream if the therapy or product is commercially successful, then use the return on investment to fund additional EB research until a cure is found.
To learn more, visit www.ebresearch.org
ABOUT REPUBLIC RECORDS
A division of Universal Music Group, the world's leading music company, Republic Records is home to an all-star roster of multi-platinum, award-winning legends and superstar artists such as Ariana Grande, Drake, Florence + the Machine, Greta Van Fleet, Hailee Steinfeld, Jack Johnson, James Blake, James Bay, Jessie J, John Mellencamp, Jonas Brothers, Julia Michaels, Kid Cudi, Liam Payne, Lil Wayne, Lorde, Metro Boomin, NAV, Nicki Minaj, Of Monsters and Men, Pearl Jam, Post Malone, Seth MacFarlane, Taylor Swift, The Weeknd, Zendaya and more. Founded by brothers and chief executives Monte and Avery Lipman, it is also comprised of innovative business ventures, including American Recordings, Boominati Worldwide, Brushfire, Casablanca Records, Cash Money, Lava Records, Monkeywrench, XO, Young Money, among others. Republic also maintains long-standing strategic alliances with Universal Music Latin Entertainment (J Balvin and Karol G) and Hollywood Records. In addition, Republic has expanded to release high-profile soundtracks for Universal Pictures (Fifty Shades of Grey), Sony Pictures (Spider-Man Into the Spider-Verse) and NBC TV (The Voice), as well as other notable film and television franchises. Extending further into the worlds of film, television, and content, Republic launched Federal Films in order to produce movies and series powered by the label's catalog and artists. Its first production was the Jonas Brothers documentary Chasing Happiness for Amazon Prime Video.